If you or a family member has been diagnosed with extramammary Paget’s disease (EMPD), we would truly love to hear from you.

An EMPD diagnosis can feel isolating. Because the disease is rare, many people go through it without ever meeting someone who understands what they are facing. This website exists to help change that by increasing awareness of extramammary Paget’s disease (EMPD) and supporting patients and families worldwide.

The site is managed by EMPD patient and caregiver volunteers who understand firsthand how meaningful it can be to connect with others who have walked a similar path. To date, more than a thousand people affected by EMPD from many different countries have been connected through this community.

A private support group is also available and includes women and men with EMPD, along with family members and caregivers from around the world. If you would like more information about joining, please reach out on the EMPD Support Group page.

This website is independently funded through donations and the sale of EMPD awareness merchandise and has no affiliation with any doctor, hospital, medical center, or pharmaceutical company. The information shared here is believed to be accurate, but it is not a substitute for medical advice. Always consult your own physician regarding diagnosis and treatment.

While English is the primary language used, inquiries in any language are welcome and can be translated. Responses are usually sent within a few days.